Hearing Link

FAQs

james lind alliance logo, priority setting partnershipsWhat is the James Lind Alliance?

The James Lind Alliance (JLA) is named after a pioneer of clinical trials, James Lind. A plaque about James Lind in the Edinburgh University quadrangle suggests he is ‘The Hippocrates of Naval Medicine’. It then lists three of his four books – ‘A treatise of the scurvy’ (Lind 1753), ‘An essay on the most effectual means of preserving the health of seamen’ (Lind 1762), and ‘An essay on diseases incidental to Europeans in hot climates’ (Lind 1771). The plaque states that these works led to the conquest of scurvy, the development of modern naval hygiene, and the growth of tropical medicine.

PSP in Mild-Moderate Hearing Loss

Why is this project needed?

We want to help researchers to focus more on answering questions that matter to people whose lives are affected by mild to moderate hearing loss. We think this will mean that the findings of research are more likely to make a difference to people’s lives.

How did the partnership come about?

All of us will be impacted, either directly or indirectly, by hearing and communication difficulties. There are currently 10 million people in the UK with hearing loss, the majority of which fall into the categories of mild and moderate losses. Yet, hearing loss “continues to be an area in which there is low and highly variable take-up of available interventions and little systematic data for outcomes” (Murray et al., 2013).

In summer 2013, the NIHR Nottingham Hearing Biomedical Research Unit and Hearing Link initiated the mild to moderate hearing loss Priority Setting Partnership (PSP) and identified patient, clinician, and research representatives to form a Steering Group to that could guide the PSP. The first meeting of the Steering Group took place in July 2014.

Why mild-moderate hearing loss? Don’t you want to know about other illnesses?

There have been JLA partnerships to address a wide range of conditions in physical and mental health, and more are planned. You can read about these on the JLA website. If the condition which affects you is not listed the website will tell you how you can get involved in setting up a survey for that condition.

Who can take part in the survey?

Am I eligible to take part in the survey?

If you have been affected by mild-moderate hearing loss at any point in your life, we want to hear from you. We also want to hear from carers, family members and friends of people with mild-moderate hearing loss, and from the health and social care professionals who work with them.

I think my mum/friend/brother/grandpa is/has mild-moderate hearing loss. Should I take the survey?

Yes. If someone close to you has experienced the symptoms of mild-moderate hearing loss, we’d like to hear your questions.

How many questions can I ask?

The survey allows you to ask as many questions as you wish – please do.

How many survey responses are you hoping to get?

We would like as many as possible and hope to get several hundred responses. We are also hoping to get responses from people with a range of difference experiences of mild-moderate hearing loss.

Questions that can be included

What questions can I include in the survey?

You can ask any questions about the prevention, diagnosis or treatment mild-moderate hearing loss. Some examples are given at the beginning of the survey.

Does it matter if I don’t know whether my question has already been researched or not?

No. We will find this out. If the answer is not known then your question(s) will go into the list of those that we will later prioritise for research; if the answer is known, we will feed this information back through this website.

Confidentiality

Will anyone be able to trace my questions? Will they be anonymous?

No-one will able to trace your questions and you do not need to give us your name or any other personal details.

I would like to take part in the prioritisation process that happens next, but do not want my questions to be linked to me.

The prioritisation process is explained below and your help with this is welcomed. To take part, please contact us by email or post using the details provided below. We will need your details for this, but as stated above, no-one will able to link your questions to your details.

Prioritisation process

Priority Setting Partnerships collect those questions that are considered to be unanswered by research, checks the existing evidence base and removes those questions for which answers are found. The remaining questions go through an interim prioritisation exercise to reduce the long list to thirty. A Final Prioritisation Workshop is then held to rank the thirty questions in an agreed order of importance.

Can I take part in helping to prioritise the questions after the survey closes?

Yes. To take part, please contact us by email or post using the details provided below.

Can other organisations still get involved?

Yes. To take part, please contact us by email or post using the details provided below.

How can organisations and the public find out more?

If you have any questions not answered on this website, please contact us by email or post:

  • Email: JLAhearing@nottingham.ac.uk
  • Post: JLA mild-moderate hearing loss PSP, c/o Helen Henshaw, NIHR Nottingham Hearing BRU, Ropewalk House, 113 The Ropewalk,Nottingham NG1 5DU.

Other information

How is research currently funded/prioritised?

Research is usually funded by government, charities or the pharmaceutical industry. While valuable, there is evidence that what is currently researched does not always deal with the questions that matter most to people whose lives are affected by, or who treat, ill health.

How long will the project take?

We aim to know what research questions matter most to those with mild-moderate hearing loss, and produce a final report in autumn 2015.

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